The need for autism awareness and better research in India

Introduction

A survey in 2023 showed - 18 million Indians are on the autism spectrum. 

That’s 12.7% of our population! 

But this shocking statistic undermines the serious lack of data regarding disabilities in India. 

This gap rises from underreporting and undercounting. It gives us a false understanding of the prevalences of disorders like autism. And a big reason for the underreporting are the stigmas and stereotypes connected to disabilities.

Luckily, people have started to destigmatize the topic. But we still don't have the proper infrastructure to support autistic individuals. Most parents and caregivers still think that autism can be “cured” or “magically treated” but best autism treatments in India are actually good interventions that help in establishing support for the individual on the spectrum. 

Caregivers are also unaware about the latest autism research that can help them choose a treatment plan for their kids and most times fall prey to different fads. 

What is ASD?

The autism spectrum disorder is a neurological and developmental disorder. It affects the way someone talks, learns, interacts and behaves. With the proper autism treatment, support or intervention at an early age, autistic individuals can lead a fulfilling life. 

Current studies have shown 1.5% of children below 9 years in India are autistic. Yet, many families face discrimination for having an autistic member. Kids with ASD get bullied in school more than kids without ASD. And while, in the past decade, the stigma around this topic has decreased - we need to build more awareness. 

We need to unlearn our biases and understand and learn more about the diverse needs and experiences of the individual, this is how we can better support them and contribute to a more inclusive and empathetic society. 

The importance of awareness about autism

Society often misunderstands Autism, leading to stereotypes and stigma that can affect and cause immense shame to families and individuals. This lack of understanding leads to situations like isolation and poor mental health for the entire family. By increasing access to  autism resources and other information a visible change will occur. 

If more Indians have access to autism resources and its aspects -

it will significantly improve the quality of life for 13% of our population and their families.

This awareness can also help with early diagnosis leading to timely autism treatment. It can create better support systems too. From inclusive education, and accessible healthcare, to specialised services. Individuals with autism can be integrated fully into society.

Schools can start early by teaching students about ASD. Educational programs and media campaigns can also be very useful for spreading awareness.

The importance of better research

In India, research for autism is still in its early stages. Some organisations are conducting studies that focus on understanding autism within the Indian context. But, most of the latest autism research still occurs in the West. So the results do not always apply to the Indian population. That's why there are significant gaps in our understanding of autism.

Because of the lack of comprehensive genetic studies specific to the Indian population -our understanding of biological factors contributing to autism is limited. Also, early intervention strategies tailored to Indian social settings are few. It's difficult for families to access effective therapies.
Investing in better research can transform autism support in India. Relevant and accessible autism treatment and support will help individuals with autism to thrive.

How to increase autism awareness and quality of research

• Policies and initiatives by the government
  Increased funding for autism research, by the government, is crucial. Along with policy changes that focus on the needs of individuals with autism can bring awareness to the issue.
  
  The government can also bring global expertise and autism resources to India by collaborating with agencies. Implementing stricter policies will ensure inclusive education and healthcare. All these steps can create a more supportive environment for those with autism and their families.
• NGOs and advocacy groups
  Non-governmental organisations (NGOs) and advocacy groups play a vital role in driving change. These organisations can raise awareness, give support to families, and advocate for policy changes. They can organise workshops, seminars, and campaigns to educate the public and reduce stigma.
  
  NGOs even have the advantage of working closely with communities. This helps them tailor interventions to meet the specific needs of individuals with autism and their families.
• The community's involvement
  Communities can support individuals with autism in many ways. Inclusive practices, such as creating autism-friendly spaces. Or organising support networks. These can make a significant difference. Even local support groups can offer families a platform to share lived experiences, failures or autism success stories and most importantly helpful autism resources.
  
  This leads to a sense of community and belonging. Schools and workplaces can also contribute by implementing programs that promote understanding and acceptance of autism.

Conclusion

Autism awareness and research are crucial for improving the lives of individuals with autism and their families. By understanding the disorder better, we can dismantle stereotypes. We can encourage inclusion and develop effective support systems. The combined efforts of the government, NGOs, and communities can bring a change.

We all have a role to play in promoting autism awareness. We can volunteer with an organisation. We can advocate for policy changes. Or we can simply educate ourselves and others about autism, autism success stories and struggles. Every action counts. We must work together to create a more inclusive society where individuals with autism are valued.

The journey towards higher autism awareness and research is ongoing. The potential for positive change is huge. By welcoming diversity and broadening our scope of understanding, we can build a future where everyone has the opportunity to thrive.
 Let's be the change-makers in this journey to build the best autism treatment by ensuring a good support system in India.